Alder Hey Children’s Hospital gets Cure HHT Center of Excellence status

Alder Hey Children’s Hospital in Liverpool has been designated a Cure HHT Center of Excellence, adding the U.K. pediatric hospital to a global network focused on expert care for hereditary hemorrhagic telangiectasia. The recognition is meant to improve access to coordinated screening, treatment and multidisciplinary support for children and families living with HHT.

Why it matters: - The designation expands access to specialized care for people with hereditary hemorrhagic telangiectasia, a genetic condition that can affect the nose, lungs, brain, liver and gastrointestinal tract. - Cure HHT’s Center of Excellence network now includes more than 50 certified centers worldwide. - The certification is designed to connect patients with experienced clinicians, screening protocols and multidisciplinary treatment for a complex, often underdiagnosed disease.

What happened: - Cure HHT officially recognized Alder Hey Children’s Hospital in Liverpool, United Kingdom, as an HHT Center of Excellence. - The announcement said the hospital is now part of Cure HHT’s global Center of Excellence network. - Alder Hey Children’s Hospital is accepting new patients and welcomes inquiries from patients, families and referring providers. - More information is available through Alder Hey’s website and Cure HHT’s Center of Excellence listings.

The details: - Cure HHT said the center designation followed a comprehensive evaluation process. - The process is meant to ensure access to appropriate screening, treatment protocols and multidisciplinary care. - HHT symptoms can vary widely from person to person, and complications can be serious. - Prof. Calum Semple, HHT Center of Excellence Medical Director at Alder Hey Children’s Hospital, said the recognition reflects the hospital’s interdisciplinary approach and care for children, young people and families affected by HHT. - Alder Hey’s multidisciplinary team includes Clinical Genetics, Paediatric Respiratory, Paediatric ENT Surgery, Paediatric Haematologist, Radiology, Paediatric Cardiology, Paediatric Neurosurgery, Paediatric Interventional Radiology and Gastroenterology.

Between the lines: - The designation gives Alder Hey external validation from a specialty network rather than a local award. - That matters because HHT care often requires coordination across multiple departments, not a single clinic visit. - The hospital’s pediatric focus may improve access for children and young people whose symptoms can be missed or delayed in diagnosis.

What’s next: - Alder Hey said the recognition will help the team continue developing its service, raise awareness of treatment options and connect more families with support. - The hospital will continue taking new patient inquiries as the center builds its role in the network. - Cure HHT will likely use the center listing to steer more patients and referring providers toward the Liverpool team.

The bottom line: - Alder Hey Children’s Hospital is now part of a global HHT referral network, which should make it easier for patients in the U.K. to find coordinated specialty care for a rare and potentially serious genetic disease.